The Association Introduction

Association Goals

The association promotes and supports individuals with creatine deficiency syndromes through the following purposes:

• ⁠Patient, family, and public education

• Build networks and establish connections: between affected families, medical professionals, and researchers, as well as with other patient organizations

• Promote and encourage research for therapies for creatine deficiency disorders

Who We Are

ToDo

Here we could introduce ourselves (board members and members), add a picture, and create additional subpoints.

Where We Are

ToDo

Idea: Either under "Getting Help" or "The Association," a map of Germany could be provided, indicating where affected individuals live (perhaps at the district level) and where capable doctors or doctors with open ears can be found.